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PCMR Published Abstracts

Jeffrey A. Towbin, April M. Lowe, Steven D. Colan, Lynn A. Sleeper, E. John Orav, Sarah Clunie, Jane Messere, Gerald Cox, Paul R. Lurie, Daphne Hsu, Charles Canter, James D. Wilkinson, Steven E. Lipshultz, "Incidence, Causes, and Outcomes of Dilated Cardiomyopathy in Children". JAMA Vol 296, No. 15, 1867-1876. Full Text (.pdf)

Gerald F. Cox, Lynn A. Sleeper, April M. Lowe, Jeffrey A. Towbin, Steven D. Colan, E. John Orav, Paul R. Lurie, Jane E. Messere, James D. Wilkinson and Steven E. Lipshultz, "Factors Associated With Establishing a Causal Diagnosis for Children With Cardiomyopathy". Pediatrics 118: No 4, October 2006. Full Text (.pdf)

Colan SD, Lowe AM, Lipshultz SE, Sleeper LA, Cox GF, Lurie PR, Towbin JA, "Etiology-specific Outcome in Pediatric Hypertrophic Cardiomyopathy". Circulation Supplement 110: III-516, 2004. Full Text (.pdf) Presentation (.ppt)

Lipshultz SE, Orav EJ, Towbin JA, Messere J, Iadarola S, Cuniberti L, Lowe AM, Clunie S, Cox GF, Lurie PR, Canter C, Hsu D, Morrow WR, Colan SD. "Outcome Predictors in Pediatric Hypertrophic Cardiomyopathy". Circulation Supplement 110: III-442, 2004.Full Text (.pdf) Presentation (.ppt)

Sleeper LA, Towbin JA, Colan, SD, Hsu DT, Lemler M, Messere J, Clunie S, Cuniberti L, Servedio D, Rodgers-Augustyniak L, Lowe AM, Iadarola S, Orav EJ, Lipshultz SE, "Impaired Functional Status In Children With Cardiomyopathy: A Report From The Pediatric Cardiomyopathy Registry". Circulation Supplement 110: III-385, 2004. Full Text (.pdf) Poster (.ppt)

Connuck D, Sleeper L, Towbin J, Colan S, Cox G, Cuniberti L, Orav J, Salbert BA, Lipshultz S. " Characteristics of Duchenne and Becker Muscular Dystrophy Patients in the Pediatric Cardiomyopathy Registry." J Am Coll Cardiol Supplement 43:1164-126, 2004. Full Text (.pdf)

Gerald F. Cox, MD; Lynn A. Sleeper, ScD; April M. Lowe, MS; E. John Orav, PhD; Paul R. Lurie, MD; Kristina L. McCoy, BS; Jane E. Messere, RN; Rebecca A. Orfaly, BS; Jeffrey A. Towbin, MD; Steven D. Colan, MD; Steven E. Lipshultz, MD. "Variables Associated with a Known Etiology of Cardiomyopathy in Children: A Retrospective Analysis of the Pediatric Cardiomyopathy Registry (PCMR) from 1990-1995." Circulation Supplement 84:II-588, 2001. Full Text (.pdf)

Lipshultz SE, Towbin JA, Grenier MA, Osganian V, Colan SD, Sleeper L, Shaddy R, Cox G, Lurie P, Kleinman K. "Etiology and Family History of Pediatric Cardiomyopathy: The Early Pediatric Cardiomyopathy Registry (PCMR) Experience." J Am Coll Cardiol 1998; 31:30A.

Steven E. Lipshultz, MD; Lynn A. Sleeper, ScD; Jeffrey A. Towbin, MD; April m. Lowe, MS; E. John Orav, PhD; Gerald F. Cox, MD, Paul R. Lurie, MD; Kristina L. McCoy, BS; Jane E. Messere, RN; Rebecca A. Orfaly, BS; Steven D. Colan, MD "The Incidence of Pediatric Cardiomyopathy: The Prospective Pediatric Cardiomyopathy Registry." J Am Coll Cardiol supplement 37: 1180-196, 2001. Full Text (.pdf)

Orfaly R, Nash P, Sleeper L, McCoy K, Lipshultz S. "Converting Centralized Data Entry to Web-Based Data Entry also Means Changing Habits." Control Clin Trials Supplement 22: P 48, 2001.

PCMR Presentations

Connuck D, Sleeper L, Towbin J, Colan S, Cox G, Lowe A, Orav J, Messere J, Salbert BA, Lipshultz S. "Characteristics of DMD/BMD patients at enrollment in the PCMR." Oral Presentation, 2003 Muscular Dystrophy Association Annual Session.

Harmon WG, Sleeper LA, Cuniberti L, Messere J, Colan SD, Orav EJ, Towbin JA, and Lipshultz SE. "Dilated Cardiomyopathy: An Analysis Of Therapy Offered to Children Enrolled in the Pediatric Cardiomyopathy Registry." Poster presentation at Cardiology 2004, Children's Hospital of Philadelphia sponsored Annual Conference, Orlando, Florida, February 25, 2004. Full Text (.pdf)

Harmon WG, Sleeper LA, Cuniberti L, Messere J, Colan SD, Orav EJ, Towbin JA, and Lipshultz SE. "Dilated Cardiomyopathy: An Analysis of Therapy Offered to Children Enrolled in the Pediatric Cardiomyopathy Registry." Platform presentation at the Pediatric Academy of Sciences/Society for Pediatric Research, San Francisco, CA, May 4, 2004.

Salbert BA, Lowe AM, Connuck DM, Towbin JA, Colan SD, Cox GF, Sleeper LA, Cadregari ER, Clunie SC, Messere J, Lipshultz SE. "Noonan Syndrome and Cardiomyopathy: Outcome Indicators." Poster presentation at The American Society for Human Genetics Annual Meeting 2003, Los Angeles, CA, November 25, 2003. Full Text (.pdf)

PCMR Accepted Abstracts

PCMR Published Manuscripts

Steven D. Colan, Steven E. Lipshultz, April M. Lowe, Lynn A. Sleeper, Jane Messere, Gerald F. Cox, Paul R. Lurie, E. John Orav and Jeffrey A. Towbin. Epidemiology and Cause-Specific Outcome of Hypertrophic Cardiomyopathy in Children. Findings From the Pediatric Cardiomyopathy Registry. Circulation published online Jan 29, 2007. Full Text (.pdf)

Steven E. Lipshultz, MD; Lynn A. Sleeper, ScD; Jeffrey A. Towbin, MD; April M. Lowe, MS; E. John Orav, PhD; Gerald F. Cox, MD, PhD; Paul R. Lurie, MD; Kristina L. McCoy, RN; Melissa A. McDonald, MPH; Jane E. Messere, RN; Steven D. Colan, MD. " The Incidence of Pediatric Cardiomyopathy in Two Regions of the United States." New England Journal of Medicine. 2003; 348: 1647-55. Full Text (.pdf)

Marcy L. Schwartz, MD; Gerald F. Cox, MD, PhD; Angela E. Lin, MD; Mark S. Korson, MD; Antonio Perez-Atayde, MD; Ronald V. Lacro, MD; Steven E. Lipshultz, MD. "Clinical Approach to Genetic Cardiomyopathy in Children." Circulation. 1996; 94:2021-2038. Full Text (.pdf)

Michelle A. Grenier, MD, Stavroula K. Osganian, MD, MPH, Gerald F. Cox, MD, PhD, Jeffrey A. Towbin, MD, Steven D. Colan, MD, Paul R. Lurie, MD, Lynn A. Sleeper, ScD, E. John Orav, PhD, and Steven E. Lipshultz, MD. "Design and implementation of the North American Pediatric Cardiomyopathy Registry." American Heart Journal. 2000; 139:S86-S95. Full Text (.pdf)

Works in Progress

Towbin, Jeffrey, MD. "Infantile HCM" Full Text (.pdf)

Other Recently Published Cardiomyopathy Articles

G. Michael Felker, MD, Richard E. Thompson, PhD, Joshua M. Hare, MD, Ralph H. Hruban, MD, Diedre E. Clemetson, David L. Howard, Kenneth L. Baughman, MD, and Edward K. Kasper, MD. "Underlying Causes and Long-Term Survival in Patients with Initially Unexplained Cardiomyopathy. " New England Journal of Medicine. 2000; 342:1077-1122. Full Text (.pdf)